Dear friends,
A good friend gave me a comforting phone call last night as I lay in bed. She told me, “The squeaky wheel gets the grease”. Okay, Pam, it’s time for me to be squeaky.
Once again, we are having problems with pain control. He essentially has a constant migraine and if we don’t stay on top of his pain meds he is in bad shape. Between 7:30 and 10:30 we called the nurses in here at least 6 times. They gave him tablets, a shot and a muscle relaxant (only because we were squeaky). We kept asking if there is something else we can do. FINALLY, they called the doctor and he came to talk to us. He told the nurses to regulate Sam’s medicine so he no longer has to ask for medicine rather, they will just give it to him automatically. I really hope this helps.
The last two days he has been either sleeping, trying to sleep but can’t because he is in so much pain or, if he isn’t in much pain, we talk while he lays with eyes barely open and I read him messages from all of you. We only whisper because being loud hurts his head. We have a theory that all German men have extraordinarily booming and sonorous (Sam gave me that word) voices. When the male nurses or doctors come in to talk with Rudolf (the roommie) one might think Rudolf is hard of hearing; this is not the case. I think I may have to be squeaky again if the particularly loud nurse can’t tone it down this afternoon.
Sam was feeling well enough at lunch to enjoy yet another kid’s meal. He prefers the kid’s meals because they usually mean mac and cheese or potato pancakes with apple sauce rather than some mystery meat with some form of sauerkraut.
After lunch I lied down with Sam in his bed and we had a great nap. Unfortunately when we woke up his head was pounding again. The doctors came in and decided that probably the cords in his head were the main cause of his pain. They checked the blood bags and determined that the fresh stuff was more cerebral fluid than blood so it was time to take the cords out. So they did, right here in our room, and I watched the whole thing. I had to keep reminding myself that I do not have a weak stomach and blood does not bother me. It was quite the procedure. Sam was fully awake and I think they sprayed some numbing concoction on his new bald spot. They just pulled the cords right out and put a single stitch in each hole. The cords were much thicker and longer than we thought, no wonder his head was aching!
He felt relief almost immediately. We took advantage of the moment and walked to the bathroom for a body shower. He said it felt great. We can’t wash his hair for another couple of days. After the shower they brought Sam’s dinner; another 2 slices of bread with a slice of cheese and some fruit. Unfortunately by this time Sam’s headache and stomach ache and nausea had returned so he didn’t eat. Since then he has just been doing his best to sleep.
Essentially our day is a rollercoaster; extreme pain or nausea for a chunk of time followed by a period of relief. Unfortunately, the times of discomfort always last longer than the times of peace. When I left his room an hour ago he still felt sick to his stomach and had a headache. He was just trying his best to fall asleep.
Prayer requests:
-No complications due to the drains being removed (i.e. there is no more blood in the brain needing to be drained)
-No more rollercoaster. Or, at least, more frequent pain-free periods that last longer.
-Praise to God for our more than generous friends (y’all) who continue to help us with prayers, resources and support.
-For Sam and I to have some quality time together to talk and have a moment or two to relax and be here for each other without being interrupted by pain or sickness.
A request of another sort:
If anyone has some time to send me things that I can copy and paste into a word document to share with Sam during the day. For example, updates on all of your lives (especially this one), what’s going on in the States, fun stories from your lives or times with Sam, news articles (Sam usually watches podcasts everyday), devotionals, encouraging notes, jokes, games, anything really. We have moments of boredom throughout the day. Mostly, I have moments of boredom.
Thank you everyone for keeping updated and keeping us in your thoughts. The doctor estimated we might leave the hospital on Monday.
p.s. I feel so bad that I do not write back to all of your very sweet messages. Do know what we read every single email (I check mine and Sam’s), facebook message and wall post and appreciate every one. THANK YOU!